Because every child matters, beyond limits

Our four focus areas

Awareness

Spreading knowledge about Microcephaly in communities and health spaces through campaigns and education.

Support

Connecting families to resources, guidance, and emotional care through our network of professionals.

Research

Identifying cases across Africa to understand Microcephaly's prevalence and develop effective interventions.

Inclusion

Partnering with governments and organizations to drive policy changes and promote inclusive communities.

1. 1
   Phase 1 Running now

   Registration and Caregiver Support

   Nairobi County, Kenya

   Count Them In

   Most children living with microcephaly in Kenya are never registered with the National Council for Persons with Disabilities. Because they are not registered, their families receive nothing from the state; no assistive devices, no severe disability cash transfer, no education support.

   We walk families through the whole process: medical assessment at a gazetted centre, registration on eCitizen, and the certificate at the end of it. We go with you. It costs you nothing.

   With each family's written consent, we also record what that child's life actually requires: age, diagnosis, care needs, school status, caregiver situation, county. Those records become the first version of the registry described in Phase 2.

   If you are a parent or guardian: message us on WhatsApp +254 751 968 729. We will explain what is involved and arrange to meet you.

   Caregiver Circle

   A monthly gathering where caregivers meet each other and learn one practical skill from a volunteer clinician: positioning, feeding, seizure and convulsion response, and what to do in an emergency.

   Most of the mothers we work with have never met another mother raising a child like theirs. That isolation is its own injury, and it is one of the few we can treat immediately.

   No cost. No requirement to be registered with us. Come as you are.

   Progress to date 45children registered 40caregivers attending
2. 2
   Phase 2 In design

   The Africa Microcephaly Registry

   Not one country in Africa has a Microcephaly registry. Nobody knows how many children on this continent are living with the condition, not the ministries of health, not the hospitals, not the researchers.

   That absence has consequences. A government cannot budget for children it has not counted. A hospital cannot plan services for a condition that does not appear in its data. A researcher cannot study a population that has never been described.

   We are building that count, beginning in Kenya and extending across the continent through partnerships with clinicians, governments, researchers and caregiver organizations in each country.

   The registry is being built to serve three purposes:

   1. Advocacy: a defensible number to put in front of county and national government, so that Microcephaly appears in a health budget for the first time.
   2. Care coordination: knowing which child needs what, and following up when a family stops attending.
   3. Research: data structured to research standards from the beginning, so that African clinicians can eventually publish from it.

   We are looking for: expertise in patient registry design, and clinical partners in paediatric neurology, therapy and community health across the globe. If that is you, we would like to hear from you.

3. 3
   Phase 3 In development

   Dignity Centres of Excellence

   A Radical Empathy Model of Care

   A physical home for the care these children should have had all along.

   Each Dignity Centre (one in every Region of Africa) will bring together, in one place, what is currently scattered or missing entirely: physiotherapy, occupational and speech therapy; caregiver training; respite for exhausted families; assessment and referral; and research conducted with families rather than about them.

   The name matters to us. These are not clinics where children are processed. They are places built on the assumption that a child with Microcephaly has a life worth equipping and that the woman caring for that child is an expert, not a patient.

   This model is recognized in our nomination for the inaugural Prix Galien USA Patient First Award in 2026.

   Phase 3 is years away, and we will say so plainly until it is not. Phase 1 and Phase 2 are how we earn the right to build it.